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  • Writer's picturedrnicolend

The Lonely Road of Autoimmune Disease

Updated: May 6, 2023

If you're reading this, chances are you know all too well the ups and downs of this rollercoaster ride we call autoimmune disease. Autoimmune diseases affect millions of people globally, yet the physical and emotional toll they take on patients can often be overlooked. From misdiagnosis to endless doctor visits to trying to manage symptoms, it can feel like a never-ending journey, one that can leave you feeling lonely and isolated. In this post, we'll explore the journey that many individuals with autoimmune diseases face and offer some suggestions for finding support and hope.

The Search for a Diagnosis

Remember when you first started feeling unwell and thought it was just a temporary thing? Yeah, me too. But then the symptoms lingered, and you found yourself going from doctor to doctor, getting test after test, with no clear answers. It's a frustrating and disheartening experience, but you're not alone. The road to a proper diagnosis can take months, or even years, for some folks. Symptoms of autoimmune conditions often mimic those of other illnesses, making it difficult for healthcare providers to identify the root cause of the problem.

Living with the Condition

Once you finally get a diagnosis, the journey doesn't get any easier. It's a constant effort to manage symptoms, find the right treatment, and deal with the physical and emotional toll of autoimmune diseases. But despite all this, you keep pushing forward, finding ways to make it work and live your best life.

Living with an autoimmune disease can also mean adjusting to a new normal, one that often involves regular doctor visit and lifestyle changes. The physical and emotional demands of the condition can be overwhelming, leading to feelings of loneliness, depression, and isolation.

Finding Support

The journey of living with an autoimmune disease can be a lonely one, but it doesn't have to be. There are so many amazing communities and resources out there, from online forums to in-person support groups, where you can connect with others who get it. These support systems can be a lifesaver, offering a sense of belonging and hope in the face of this journey.


Living with an autoimmune disease can be a long and lonely road, but it's important to remember that you're not alone. With the right support, you can find hope and strength to manage your condition and improve your quality of life. Whether it's connecting with others through support groups or advocacy organizations, or finding solace in self-care practices, there are many ways to cope with the demands of autoimmune diseases. If you are looking for a community of like-minded active & fabulous women who are working towards healing their autoimmune disease & staying out of doctor's offices, then connect with me HERE.

Remember to take things one day at a time and be kind to yourself, and you'll find the hope and strength you need to navigate this journey. So, here's to all of us fierce autoimmune warriors, thriving on this journey. You've got this!

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